Fetal Center Patient Stories | Texas Children’s (2024)

Table of Contents
Amniotic Band Syndrome Overcoming odds: how Kai survived amniotic band syndrome Congenital Diaphragmatic Hernia(CDH) Glenn Family Finds Hope Far From Home Groundbreaking Procedure for Severe CDH One Team, One Miracle, One Daughter CDH: Three letters that changed our lives Duodenal Atresia 14 Years Later, Miracle Baby is Just a Normal Teen Fetal Hydrops From hydrops to hope Hydronephrosis Thomas's story: Conquering hydronephrosis at Texas Children's HypoplasticLeft Heart Syndrome (HLHS) Lifesaving Surgical Care for Patient with HLHS Lower Urinary Tract Obstruction (LUTO) Extraordinary Outcome for Devastating LUTO Case Eli's story: Traveling to Texas for a lifesaving fetal surgery Lung Lesion or CCAM/CPAM Fetal Imaging and Congenital Cystic Adenomatoid Malformation: Becky's Story Spina Bifida (NTD) Emerson's story: When life gives you lemons God's answered prayer: Olivia Canezaro Family first to undergo successful two-port fetoscopic spina bifida repair in U.S. Less Invasive Approach to Fetal Spina Bifida Repair The Future of Healing for Neural Tube Defects Surgery Before Birth Changes Abdiel’s Life Sacrococcygeal Teratoma (SCT) Fetal Surgery Removes Grapefruit-SizedSacrococcygealTeratoma Tetralogy of Fallot Leo's Story: Diagnosis and Treatment of congenital heart defect, Tetralogy of Fallot Twin-Twin Transfusion Syndrome (TTTS) Burroughs Family evens the odds with TTTS treatment The Elliott Twins: Twin-Twin Transfusion Syndrome Kristi's story: Conquering TTTS References

Amniotic Band Syndrome

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Fetal Center Patient Stories | Texas Children’s (1)

Overcoming odds: how Kai survived amniotic band syndrome

Meet Kai Christensen, a 4-year-old fighter who overcame bleak chances of survival long before he was born. Kai means unbreakable and this little boy, although only 4 years old, is already living up to his name.

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Congenital Diaphragmatic Hernia(CDH)

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Fetal Center Patient Stories | Texas Children’s (2)

Glenn Family Finds Hope Far From Home

During a sonogram at 15 weeks, Jeanie and Shaun Glenn of Seward, Alaska, found out their baby’s heart was off center. Additional tests eventually revealed congenital diaphragmatic hernia (CDH) with the liver, spleen, stomach and a portion of intestines all squeezed above the diaphragm into the chest cavity.

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Fetal Center Patient Stories | Texas Children’s (3)

Groundbreaking Procedure for Severe CDH

When Jenny and Tawa Torry lost their first child to birth defects caused by congenital diaphragmatic hernia (CDH), they never dreamed they’d have to face the same heartbreaking possibility again.

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Fetal Center Patient Stories | Texas Children’s (4)

One Team, One Miracle, One Daughter

Like so many expecting parents, Amy and Joe Krese went into their 20-week ultrasound with a mix of excitement and apprehension. They were overjoyed to find they were having a girl but also learned their daughter had a bilateral CDH.

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Fetal Center Patient Stories | Texas Children’s (5)

CDH: Three letters that changed our lives

After the long weekend, we had an ultrasound at a maternal-fetal medicine clinic in Grand Rapids, Mich.; the diagnosis was confirmed. Right-sided CDH, the rarer and more severe side.

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Duodenal Atresia

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Fetal Center Patient Stories | Texas Children’s (6)

14 Years Later, Miracle Baby is Just a Normal Teen

To look at Allen Brothers today, you’d never know he had a rough start in life. Today, he’s a healthy 14-year-old, full of all the sass and attitude that comes with being a teenager, says his mother Christie.

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Fetal Hydrops

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Fetal Center Patient Stories | Texas Children’s (7)

From hydrops to hope

If you met Amelia Grace, you would be best friends immediately. The 4-year-old never meets a stranger. While in the womb, Amelia developed a condition called hydrops — an excessive accumulation of fluid that is fatal if left untreated.

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Hydronephrosis

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Fetal Center Patient Stories | Texas Children’s (8)

Thomas's story: Conquering hydronephrosis at Texas Children's

At 24 weeks, we discovered our little guy had hydronephorsis. His bladder was full and the urine was backing up into his kidneys. We were terrified! We searched endlessly for answers, and looked for any hope and help we could find.

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HypoplasticLeft Heart Syndrome (HLHS)

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Fetal Center Patient Stories | Texas Children’s (9)

Lifesaving Surgical Care for Patient with HLHS

Aiden Rodgers is a fun-loving and mischievous 2-year-old who has no idea how serious his early days were.

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Lower Urinary Tract Obstruction (LUTO)

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Fetal Center Patient Stories | Texas Children’s (10)

Extraordinary Outcome for Devastating LUTO Case

Before Luke Vela was even born, his big brother nicknamed him Tuff because of the challenges he’d already overcome.

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Fetal Center Patient Stories | Texas Children’s (11)

Eli's story: Traveling to Texas for a lifesaving fetal surgery

On Oct. 31, baby Eli will be five months old, but his journey getting here was nothing short of a miracle. It all started during Lacey Prejean's 12-week pregnancy appointment.

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Lung Lesion or CCAM/CPAM

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Fetal Center Patient Stories | Texas Children’s (12)

Fetal Imaging and Congenital Cystic Adenomatoid Malformation: Becky's Story

When Hunter and Becky Blake arrived at the Fetal Center at Texas Children's Hospital, Becky was 19-weeks pregnant and her unborn child had been diagnosed with congenital cystic adenomatoid malformation (CCAM).

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Spina Bifida (NTD)

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Fetal Center Patient Stories | Texas Children’s (13)

Emerson's story: When life gives you lemons

When life gives you lemons, make lemonade. I imagine nearly everyone has heard this old saying before. In other words, find the positive in a negative situation. In our case, we’ve been doing our best to “make lemonade” ever since finding out our daughter, Emerson Grace.

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Fetal Center Patient Stories | Texas Children’s (14)

God's answered prayer: Olivia

At their 18-week ultrasound, expecting parents Ashley and Jason learned their daughter, Olivia, had signs of spina bifida. Learn more about their journey at Texas Children’s Fetal Center and how the Fetal Team saved their daughter’s life with this innovative fetal surgery.

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Fetal Center Patient Stories | Texas Children’s (15)

Canezaro Family first to undergo successful two-port fetoscopic spina bifida repair in U.S.

When Althea Canezaro found out she was pregnant, she was thrilled to give her son, Blaine, a sibling. But, her 22-week ultrasound revealed something she didn’t expect -spina bifida.

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Fetal Center Patient Stories | Texas Children’s (16)

Less Invasive Approach to Fetal Spina Bifida Repair

Julia Wallace vividly remembers the moment a routine ultrasound revealed her unborn daughter had myelomeningocele, a type of spina bifida.

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Fetal Center Patient Stories | Texas Children’s (17)

The Future of Healing for Neural Tube Defects

Like most first-time parents, Johnna and Adam Kerres of Rock Island, Illinois, were excited to mark every milestone of their pregnancy. Until, that is, an ultrasound at 18 weeks revealed their baby boy Everett had spina bifida.

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Fetal Center Patient Stories | Texas Children’s (18)

Surgery Before Birth Changes Abdiel’s Life

Texas Children’s Hospital fetal surgery to repair spina bifida birth defect saves child from paralysis, brain damage and other life-altering complications.

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Sacrococcygeal Teratoma (SCT)

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Fetal Center Patient Stories | Texas Children’s (19)

Fetal Surgery Removes Grapefruit-SizedSacrococcygealTeratoma

Nine years ago, at their 20-week ultrasound check, Keri and Chad McCartney were thrilled to learn their fifth and final child would be a girl. But that excitement quickly turned to fear.

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Tetralogy of Fallot

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Fetal Center Patient Stories | Texas Children’s (20)

Leo's Story: Diagnosis and Treatment of congenital heart defect, Tetralogy of Fallot

Expecting parents Rachel and Levi Strauss were heartbroken when they discovered their unborn child, Leo, was diagnosed with a fetal heart defect, Tetralogy of Fallot with pulmonary atresia and a ventricular septal defect.

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Twin-Twin Transfusion Syndrome (TTTS)

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Fetal Center Patient Stories | Texas Children’s (21)

Burroughs Family evens the odds with TTTS treatment

When Julie Burroughs went in for an ultrasound of her twins at 16 weeks, she was shocked to learn that they were not growing properly due to twin-twin transfusion syndrome (TTTS).

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Fetal Center Patient Stories | Texas Children’s (22)

The Elliott Twins: Twin-Twin Transfusion Syndrome

At 18.5 weeks of gestation, the Elliott twins were diagnosed with twin-twin transfusion syndrome (TTTS), causing one twin to receive too many nutrients and the other not enough.

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Fetal Center Patient Stories | Texas Children’s (23)

Kristi's story: Conquering TTTS

When my husband, Matt and I were in New Orleans for our first ultrasound visit, we were in for a surprise. We were waiting to hear a sweet baby’s heartbeat, but instead we heard two!

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Fetal Center Patient Stories | Texas Children’s (2024)

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